The National Health and Medical Research Council (NHMRC) consolidates within a single national organisation the often independent functions of research funding and development of advice. They are a signatory to the Wellcome Data Sharing and Management Policy, summarised below.
The importance of data sharing in advancing health is becoming increasingly widely recognised.
In some research fields data sharing is well-established and has accelerated the progress of research and its application for the public good. In public health research, however, the sharing of data is not yet the norm.
We believe that making research data sets available beyond the original research will have three key benefits:
This Statement establishes guiding principles and desired goals. It recognises that flexibility and a variety of approaches will be needed in order to balance the rights of the individuals and communities that contribute data, the investigators that design research and collect and analyse data, and the wider scientific community that might productively use data for further research.
We, as funders of health research, intend to work together to increase the availability to the scientific community of the research data we fund that is collected from populations for the purpose of health research, and to promote the efficient use of those data to accelerate improvements in public health.
Funders agree to promote greater access to and use of data in ways that are:
Data management standards support data sharing
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